PRESS

Special Books by Special Kids

We had the honor of being featured on Chris Ulmer's youtube channel, Special Books by Special Kids, and what a special day it was! Special Books by Special Kids is a non profit that strives to share stories, providing individuals and families of neurodiverse community with an audience to share their thoughts and experiences. It is one of the largest disability platforms in the world!

Watch full youtube video

Local News Appearances

Local 12: Local Mother on a Mission to Raise Awareness of Rare Disease

Local 12: Local Parents of Children with Extremely Rare Disease Receive FDA Approval for Experimental Medicine

Spectrum News: Mother of Disabled Children Writes Children's Book to Inspire Others

Cincinnati Reds

The Cincinnati Reds graciously invited our two brave warriors out for Roman's 3rd birthday to throw out the first pitch at a game! See the story below:

Local 12: Reds Treat Children Living with Rare Genetic Disorder to Special Day